My letter to Massachusetts Senator John Kerry: Dear Senator Kerry, I am an RN and mother of three sons who all have disabilities. I am also an advocate for children with complex health care needs and I network with parents of children from all over the US. Most of these children have tracheostomies, g-tubes and [...]
Posts from ‘September, 2009’
Best of Joan 2
Last year I posted a video of some of my mother’s scenes from Aaron’s films. Aaron was not too happy that I made a funny video out of his serious “thriller” movies. He said, “Mom, you’re going to ruin my film career!” I just love “normal” teenage stuff. We don’t get much of that around [...]
Project Smile:-)
Anthony is technically in 11th grade, but because of his significant disability, he is in a specialized program called “Project Smile”. Most of the kids in Project Smile are wheelchair dependent, non-verbal and have severe developmental disabilities. The classroom is at a typical high school, so there are some inclusion opportunities. One neat program they [...]
Fox Fiction
Here we go again… This would be laughable, except that some people actually think they are getting real news from Fox. This is just more of the same old republican ploy of using fear and fiction in order to influence ignorant people.
We Can’t Afford to Wait
A health care bill without a public option is not reform.
Dog Sled
We’ve been trying to find a sled that will work for Eric in the wintertime. When he was little, there were lots of options, but now that he has grown, we haven’t been able to come up with anything. He needs a firm backrest and his feet need to be off the snow. I know [...]
Praying for the Death of the President
Is it me, or are religious fanatics getting worse here in the US? We know things are bad in some parts of the world with religious extremists, but since when do religious “leaders” here in the states preach hate? The Reverend Steven Anderson of the Faithful Word Baptist Church in AZ told his flock that [...]
First Day of School
Officially, Anthony starts 11th grade and the twins start 10th grade today. Although grades don’t really mean much to us. None of us were too happy to get up early this morning, especially Mom who has to get up at 4:30am in order to get all of the boys up, fed and off to school [...]
