Posts under ‘Disability Advocacy’

2010; sounds like a year out of a science fiction movie. Today we celebrate a new year and a new decade. Hard to believe it’s 2010! I remember when I was a kid thinking how ancient I would be in the year 2000! Well, now I’m 10 years older. The young get old and the [...]

Medically Fragile Children: Forgotten H1N1 Patients?

Is he lying or living under a rock? Public Option Fact Check *All three House committees that have passed health insurance reform bills this session have included a public option. [Washington Post, 8/2/2009] *Polls continue to show that two out of every three Americans support health insurance reform that includes a public option. [Kaiser Family [...]

Tomorrow, Tuesday, October 20, 2009 the Arc of Massachusetts and a number of other statewide disability advocacy groups will participate in a virtual protest against further budget cuts to human services for our most vulnerable residents of the Commonwealth. More than ten thousand individuals with disabilities have already lost some or all essential services this [...]

Shortly before he died, Dr. John Koomey recognized a transportation problem for students with special needs at our local high school. The high school has a Functional Academic School-to-Work Program, but due to a lack of transportation, the student’s access was limited to establishments within walking distance of the school. Dr. Koomey’s family said he [...]

My letter to Massachusetts Senator John Kerry: Dear Senator Kerry, I am an RN and mother of three sons who all have disabilities. I am also an advocate for children with complex health care needs and I network with parents of children from all over the US. Most of these children have tracheostomies, g-tubes and [...]

Anthony is technically in 11th grade, but because of his significant disability, he is in a specialized program called “Project Smile”. Most of the kids in Project Smile are wheelchair dependent, non-verbal and have severe developmental disabilities. The classroom is at a typical high school, so there are some inclusion opportunities. One neat program they [...]

A health care bill without a public option is not reform.

Growing up, I was a tomboy. I loved sports, especially baseball. I hate to brag but honestly, I was a better ball player than most of the boys in my neighborhood. Every spring when the little league had it’s parade and the baseball season started, I was so jealous of the boys, because back then [...]

I am just amazed by the number of right-wing crazies who are fighting against health care reform when they have no idea what they are talking about. The GOP backed by the insurance companies are using the republican scare tactics and false rumors to protect their interests. They don’t want the current system to change, [...]